Patient Groups & Patients

Integrity and transparency determine our collaboration with patient groups and patients

Collaborating with patient groups and patients in every part of the lifecycle of our medicines and diagnostics is core to achieving Roche’s purpose.

Sustainable partnerships with patient groups and patients is an efficient way to get valuable perspectives, knowledge and experience that influence Roche’s work across therapeutic areas—from drug development to regulatory approval, access and health policy. We collaborate with
patient groups and patients on projects ranging from real-world data (e.g. FMI and Flatiron), access to medicines, disease awareness to clinical trial design.

Different stakeholders, e.g. governments, trade associations (such as EFPIA, MedTech Europe and AdvaMed), the public and the media, call for integrity and transparency in terms of how the industry interacts with patient groups and request the disclosure of financial and in-kind
support provided by the industry. Annually, Roche publishes the names of all patient groups it works with globally, and the support provided to them, on various channels.

Roche consistently applies high standards of conduct in its collaboration with patient groups and patients. All collaborations with patient groups and patients are based on the common values of integrity, independence, respect, equity, transparency and mutual benefit.

We are all expected to:
  • Respect patient groups and patients as important stakeholders.
  • Base collaboration with patient groups and patients on the standards of integrity, consult the Roche Directive on Collaboindependence, respect, equity, transparency and mutual benefit. rating with Patient Groups and Patients.
Questions & Answers

I am working in the commercial department. In order to increase the sales, I intend to give a financial contribution to a patient group as a return for the patient group’s public support of the Roche product I am responsible for. Is this behaviour correct?

No. You must respect the independence of the patient group and are not allowed to abuse the patient group as a marketing tool.

I am collaborating with a patient group in specific projects and sometimes the personal data of patients is shared with me. What do I have to do?

It remains your duty to make sure that personal data related to the specific project is adequately protected.

Further Informations

Further information and guidance can be found on the Roche Internet and Intranet. For specific information consult the Roche Directive on Collaborating with Patient Groups and Patients.